PPAR Publication and Key Recommendations from Consensus Conference
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(Photo credit: Patricia Kuharic)
Director: Catherine Riffin
Steering Committee: Ronald Adelman, Lauren Bangerter, Sara Czaja, Joan Griffin, Karl Pillemer, Steven Starks, Jennifer Wolff, Loretta Veney, Martha Villanigro-Santiago
Point-of-Contact: Lilla Brody (email@example.com)
Goals & Objectives
The overarching goal of this conference was to establish a policy- and practice-aligned research agenda for enhancing family and other unpaid caregiver engagement and support in health care settings, using Alzheimer’s disease and related dementias (ADRD) as a model for other chronic and progressive diseases.
The specific objectives in achieving this goal were to:
1. Produce an up-to-date non-technical background paper that reviews the literature on family/unpaid caregiver engagement and support in health care delivery;
2. Convene a select group of research, practitioner, policy, and community experts for discussion on this topic;
Arrive at consensus regarding research priorities and recommendations; and
3. Disseminate conference recommendations to a varied and broad audience. Overall, the aim was to create a forum for a continuous loop of communication between research, practice, and advocacy to establish a joint conception of research priorities.
Recommendations are being published, written up for a press release, and are being disseminated widely to local and national funding agencies, practice associations, and professional organizations. To reach a broader audience, conference attendees are sharing the findings with their local constituencies via social media, word of mouth, and print distribution.