The 2021 Conference on Engaging Family and Other Unpaid Caregivers of Persons with Dementia in Health Care Delivery

PPAR Publication and Key Recommendations from Consensus Conference

File April 2022 Publication in Public Policy & Aging Report 

File Summary of Recommendations

Please Support our Recommendations Here: Recommendation Endorsement Form 

Conference Attendees

(Photo credit: Patricia Kuharic)

Conference Personnel

Director: Catherine Riffin

Steering Committee: Ronald Adelman, Lauren Bangerter, Sara Czaja, Joan Griffin, Karl Pillemer, Steven Starks, Jennifer Wolff, Loretta Veney, Martha Villanigro-Santiago

Point-of-Contact: Lilla Brody (

PDF icon Attendee Bios

PDF icon Speaker Booklet

Goals & Objectives

The overarching goal of this conference was to establish a policy- and practice-aligned research agenda for enhancing family and other unpaid caregiver engagement and support in health care settings, using Alzheimer’s disease and related dementias (ADRD) as a model for other chronic and progressive diseases.

The specific objectives in achieving this goal were to:

1.   Produce an up-to-date non-technical background paper that reviews the literature on family/unpaid caregiver engagement and support in health care delivery;

2.   Convene a select group of research, practitioner, policy, and community experts for discussion on this topic;
Arrive at consensus regarding research priorities and recommendations; and

3.   Disseminate conference recommendations to a varied and broad audience. Overall, the aim was to create a forum for a continuous loop of communication between research, practice, and advocacy to establish a joint conception of research priorities.


Dissemination Activities

Recommendations are being published, written up for a press release, and are being disseminated widely to local and national funding agencies, practice associations, and professional organizations. To reach a broader audience, conference attendees are sharing the findings with their local constituencies via social media, word of mouth, and print distribution.

Identification and Assessment

Organizations and Institutions Represented at the Conference Include

Caregiving Conference Participant Logos

Icons of Partners

We are supported by the NIA: R13 AG063512-01A1

Division of Geriatrics and Palliative Medicine New York-Presbyterian Hospital Weill Cornell Medicine New York, NY